Biography:
Since 1991, Stephanie has been rooted in the field of healthcare. Starting as a district nurse, she evolved into an innovator/projectleader. In 2004, she obtained her master's degree in Healthcare Management. In 2007, she co-founded the PAL-Foundation, dedicated to palliative care for children, and has since been actively involved in advancing children's palliative care. In recent years, Stephanie has shifted her focus towards consultancy and research. In 2018, alongside her work in practice, she started a PhD-project exploring 'How control influences the interaction between healthcare professionals and families with children with complex medical needs, aiming to achieve better outcomes’.
Taking control of one’s own life from the perspective of parents with a child with a life-limiting or life-threatening illness: A qualitative study